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Showing posts from May, 2022

What is My Worth? An Open Letter to the 2022 Lupus Summit

  One of the things I struggle most with since being diagnosed has been my sense of value.    I mean, it’s understandable considering the world we live in. We often base it on tangible things like our careers, the things we have, the places we go, the money we make.   So, what happens when suddenly, those core things are taken away and you’re left scrambling to find your identity in a world that you no longer fit into?     God. Thats the million-dollar question, isn’t it? How do we measure value?   It looks different for everyone though at the end of the day there is a kind of universally understood line drawn in the sand.  I see it all the time- through social media, advertising, hell- it’s even plastered all over dating apps with things like “I have a house, a car, a career- I expect you to have your shit together as well” written on more profiles than I can count.   Even the dictionary has a few very specific descripti...